Skin Disorder Journey Article

I need an article about a patient’s journey from the onset of a rare dermatological disorder to it’s correct diagnosis. Rare skin disorders are difficult to diagnose. The audience for the article are patients with a similar conditions and their dermatologists. It should be informative in tone but not something that would be published in a medical journal. Key points to cover include: - Challenges faced during the diagnostic process - Overview of treatment options and the patient's chosen path - Reflections on living with the condition - Description of the rare skin disorder from the patient pespective. - Patient's initial signs and his reaction, e.g., growing anxiety - Limit use of technical/medical language. Use lay language as much as possible. - Patient's initial signs (what patient/family can see) and experiences (espcially growing anxiety) - Challenges faced during the diagnostic process. The term “Diagnostic Odyssey” is used by patients, patient advocates and dermatologists. - Overview of treatments undertaken for the wrong diagnosis. Their is growing dispair and anxiety - Reflections on living with a rare dermatologcal condition that has no known cause, no cure, and no FDA-approved treatment. Ideal skills and experience: - Strong medical writing background - Ability to convey complex medical information clearly - Experience writing for a patient audience - Empathy and sensitivity in handling personal health narratives - The interjection of humor is OK Four parts to the RareDERM story - Patient information and onset of the disorder: 500 words - First exam by dermatologist and a misdiagnosis: 500 words - The diagnositic odyssey: 500 words - The definitive diagnosis: 500 words